Posts Tagged ‘resources’

GFM New Lifestyle Expert on GlutenFreeChoices.com

Sunday, February 5th, 2012

Houston, we have lift-off. A while back I had mentioned a partnership that I had entered with a fantastic manufacturer of gluten-free products. Well, I am happy to announce that the company is the Hain Celestial Group and the endeavor is their brand spanking newly revised Web site www.glutenfreechoices.com.

I am honored to have been named one of the company’s gluten-free lifestyle experts and have provided a host of content that I hope you will enjoy. Be sure to head-on over to their Web site and check out all the great changes they have made. To follow my content, simply click on the Talking Gluten Free tab at the top of the page. I’ll be dishing about everything from travel to going gluten-free at the office and they’ll be two updates a month so there will always be fresh content. So come on over and let’s dish, gluten-free of course.

What Better Way to Start May Than With The NFCA?

Sunday, May 1st, 2011

May is Celiac Awareness month and my ever-fabulous friends over at the National Foundation for Celiac Awareness (NFCA) are having a Blogger a Day series the entire month to not only help to raise awareness for Celiac  disease but to also highlight some great resources for those living with Celiac disease to turn to.

I am honored to have been selected as the first in this series to help kick-off what I am sure will be a fantastic series and I know that I am looking forward to learning more about the 30 others that will be featured throughout the month.  I mean can how can you go wrong with a cavalcade of Celiacs?

While this is a great way to help raise awareness and show how divers the Celiac community is, I wanted to also bring to light that every month is Celiac Awareness month at the NFCA.  They are truly a great organization that work tirelessly throughout the year to help make life as a Celiac easier for all of us.

Whether it is educating restaurants, business, and professionals through its Gluten-Free Resource Education and Awareness Training (GREAT) program or throwing one heck of a gluten-free bash in Philadelphia at its annual Appetite for Awareness (read all about my experience at last year’s event Part I and Part II), they are constantly bringing Celiac awareness into the spotlight.  You can read all about what the NCFA has been up to this past year on their Web site not to mention they have quite a few great things on the near horizon.

But this is really just the tip of the iceberg and I encourage you to spend some time on their Web site and peruse all of the great information that they have compiled.  It’s all there from helpful resources and webinars to personal stories on other’s journey with Celiac disease.

I am happy to count the NFCA as friends and thank them for all that they do to help raise awareness every day for Celiacs across the country.

Gluten Free Childrens Book Review

Wednesday, March 23rd, 2011

I received a review copy of Mommy, What Is Celiac Disease? by Katie Chalmers and have been meaning to post my thoughts and share the book with you.  Now I am sure you are wondering, hmmm, GFM you don’t have any children.  That’s just it.  Had Katie not contacted me I would have likely not come across the book and I can safely say that would have been a major loss on my part.  You see, yes, it is a children’s book that is both wonderfully written and illustrated but while I was reading it I found that it spoke to all Celiacs no matter where they are in their gluten-free journey.

I remember a time, around my diagnosis, where few had even heard of Celiac disease (myself included) and after my diagnosis it was pretty much a learn as you go experience with quite a few missteps along the way.  Alas, that which does not kill us makes us stronger – and now I feel like a gluten-free veteran.  Sure, there are tons of resources available to the newly diagnosed but as I read Katie’s book I kept wondering how great would it have been to have something like this 10 years ago?  I am certain that even today a Celiac diagnosis can be overwhelming and remains a challenge for both adults and children.  I was diagnosed in my twenties and was often perplexed with what being Celiac meant so I can only imagine how difficult it must be for young children to suddenly be told No, you cannot have what everyone else can

What’s great about Katie’s book is that it does not explain Celiac as a singular experience but rather something an entire family must learn to come together and deal with.  The central message of you are not alone is a powerful one that Katie managed to capture beautifully.  Her focus was not on the taking away of foods but rather a learning experience on what (and why) foods could be safely enjoyed and what a Celiac must also look out for.  The mother in the book quickly offers replacements for some favorite treats and approaches Celiac as something that makes the child special (i.e. bringing their very own cupcake to a friends party) rather than alienating the child and making them feel like they are the odd one out.

I can see this book being great to not only educate children and their friends about Celiac disease but also for various family members and friends who still might not get it yet.  I can think of a few people in my life that could benefit from this book :-) .  It is important for all of us to take a page from Katie’s book in that we are not alone and being Celiac is not limiting but actually empowering and uniting.

Head on over to Katie’s Web site to learn more about her and her book and how to get your very own copy.  She also has some great Celiac information and resources on there as well.

Our Best Thoughts Come From Others, R.W. Emerson

Friday, November 13th, 2009

A while back Gluten Free Mike was approached to be part of a new (and rather exciting) online venture of Harvard Medical School, the Stanford School of Medicine, The University of Michigan Medical School, the UC Berkeley School of Public Health, and other health organizations around the globe called Medpedia. Of course I jumped at the opportunity and am happy to be able to announce three exciting new services that are now in beta testing and invite all of my readers to check out the Medpedia Web site.

But first what exactly is Medpedia? Here is a description from the site itself:

The Medpedia Project is a long-term, worldwide project to evolve a new model for sharing and advancing knowledge about health, medicine and the body among medical professionals and the general public. This model is founded on providing a free online technology platform that is collaborative, interdisciplinary and transparent.

Users of the platform include physicians, consumers, medical and scientific journals, medical schools, research institutes, medical associations, hospitals, for-profit and non-profit organizations, expert patients, policy makers, students, non-professionals taking care of loved ones, individual medical professionals, scientists, etc.

There are community groups of interest across a wide-range of topics and conditions (Celiac included) where members can ask and answer questions helping other Celiacs on their journey and sharing new and relevant information.

Now for the new offerings (you can view the full press release here):

A News & Analysis section provides high-quality health and medical content sources and you will find a feed to the very blog you are reading right now (though, in the spirit of transparency you will notice my real name vs. my online alter ego but you will know it is me from my mug shot). I am in very good company (with both new and familiar faces) and encourage you to check out some of the other blogs and resources that were selected for inclusion. Medpedia Answers provides questions and answers relating to health, medicine, and the body – think real-time Q&A. Finally, Medpedia Alerts is an aggregator of health and medical news alerts from both organizations and community members so you can stay current on what is going on in your areas of interest.

I a proud and honored to be part of such a worthwhile initiative that can help raise awareness of Celiac disease and more importantly provide a sounding board for Celiacs to interact and share knowledge. The Celiac community really just scratches the surface of Medpedia’s offerings and there is a wealth of information across the spectrum of conditions and health interests.

I encourage you to take a tour of Medpedia and join the Celiac and other communities of interest. Hope to see you there.

Living Well in a World Full of Gluten

Monday, July 6th, 2009

Okay, so Madonna might have been living in a material world but we celiacs are living in a world of gluten.

By now you have probably picked up on my mantra of Living Well Gluten Free.  Well, I will be the first to say it is not always an easy task, particularly when dining out though the tide is changing slowly to accommodate Celiacs.  But I say why wait?  I mean yes, in a perfect world all restaurants would have clearly labeled GF options and recommendations for us but in the real world it is up to us to navigate the gluten-filled world that surrounds us.

When I go into a restaurant, chain (gasp) or otherwise the first words out of my mouth are Do you have a gluten free menu?  Sometimes I am met with blank stares but other times I am simply amazed that yes Virginia, GF menus or at least recommendations do sometimes pop-up.  I was in a very well known Asian restaurant (Tao) with some friends here in NYC one afternoon for lunch.  Now this is a double whammy for me because not only of the gluten but the shellfish allergy I have which is really life and death matter.  Well, with my Epi-Pen in my pocket we sat down and I explained to the server my sophisticated mélange of allergies and she was simply terrific.  Apparently this restaurant has a secret book that lists every item on their menu and servers can look up, by allergy, what is safe for their diners.  When I had questions, the server relayed them to the chef for clarification.  Now, I was able to eat basically a couple of items but it was nice to be able to mainstream it with my friends and know that 1) I would not be glutenized and 2) would not die from shellfish contamination.  The point here being while I had a limited choice I was able to go where my friends wanted and have a safe and enjoyable meal without having to worry.

The lesson learned is that you need to speak up whatever your dietary restrictions are.  I have been to restaurants where I felt the server did not realize the importance of my restrictions so I simply would ask (in a very nice way) the manager for assistance.  Remember, it is not just about the ingredients in a dish, but how it is prepared and where it is prepared.  I am particularly sensitive to cross-contamination given my shellfish allergy but if you are eating something that is fried, ask if there is a dedicated fryer.  I am seeing more and more restaurants, particularly here in the city, offering either dedicated GF menus of at least educating their staff to be sensitive of diners needs.

It is your allergy so it is up to you to be responsible and ask the questions you need to feel comfortable.  Do be shy, there are increasingly more of us out there and we have evolved from becoming a mere niche to a force that is really shaping the way mainstream food is evolving.  So get out there with friends, ask the right questions, and live fabulously my fellow Celiacs.

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