Posts Tagged ‘National Foundation for Celiac Awareness’

Shades of Amber, Domino’s Pizza and the NFCA

Tuesday, May 15th, 2012

I have been waiting for the proverbial dust to settle a bit regarding the whole National Foundation for Celiac Awareness (NFCA)/Domino’s debacle hit the social media space last week.  I was off and on jury duty so was only able to follow the events briefly before heading out in the morning and then once I got home in the evening.  Unplugging for a bit actually gave me a bit of time to think about the situation and, in particular, the NFCA’s GREAT Kitchens designation.

First off, let us not forget the championing that the NFCA has done and continues to do on behalf of Celiacs to help raise awareness.  That goes without question and I think that Alice Bast and her staff have done a tremendous job.  I do however take issue with the GREAT Kitchens program credentialing system at both the Amber and Green designation-levels.  I think that the NFCA is well outside of its depth in trying to take on such a large initiative without really being able to effectively monitor or regulate the restaurants participating in their program.

I was actually invited to a virtual press conference the NFCA had to explain the new GREAT designations a couple of weeks ago.  I have to say I did find the system a bit confusing – in particular the Amber designation that seemed to not really stand for anything other than, in the words of the NFCA, a restaurant using gluten-free ingredients and has completed staff training to understand the health needs of those with gluten-related disorders. However, these restaurants cannot guarantee an environment free of cross-contamination.  This seemed to raise flags and confusion among those on the call only to be magnified when Domino’s and it’s gluten-free crust were announced to be carrying the Amber designation hit the airwaves.

I had trouble wrapping my head around the whole credentialing concept the NFCA has undertaken and tried to get a better understanding of exactly the type of commitment and training was required by those agreeing to take part.  To my surprise, and NFCA please correct me if I am wrong, to earn the highest-level of Green, participating restaurants need only have their staff take part in 90 minutes of online training modules.  Now this seemed a bit strange to me because there didn’t really seem to be any hard follow-ups or checks that would ensure that restaurants actually not only understood but were following the guidelines consistently.  I also question whether, given the complex nature of Celiac disease and the restrictions Celiac diners face, if online learning is the most effective method to use.  I mean I can watch 90 minutes of brain surgery but that doesn’t make me a surgeon.  Okay, perhaps a bit of a strong example but I don’t expect a restaurant employee to understand the intricacies of Celiac disease after 90 minutes – and quite frankly they have my health in their hands.  I was diagnosed more than ten years ago and I am still learning – and that’s with 90,000+ hours of learning.

Add the Amber designation into the mix and well, it really starts to become murky and dilute the seriousness that should be taken when it comes to restaurants understanding the needs and intricacies of safely serving Celiac guests.  So this brings us back to the Domino’s gluten-free pizza being not suitable for Celiacs. I did a double-take when I saw that but was thankful that at least they, per the NFCA product messaging, called out that it was definitely not recommended for Celiacs.  I would think that for a restaurant to earn even the Amber designation that all franchise employees would be required to take the training module.  I just find it hard to fathom that every U.S. Domino’s franchised employee took the Amber certification module (in whatever form it was given) as called out in their credentialing criteria.

In my opinion (and clearly I am not alone) the Amber designation does little to help ensure that an establishment is even remotely safe for Celiac diners.  All it does is potentially lull Celiac diners into a false sense of confused security.  It still requires us to remain diligent and ask the right questions wherever we dine – gluten-free, gluten-friendly, or otherwise.

The NFCA continues to do great work to help raise awareness for Celiac disease but has perhaps overstepped it’s capabilities in trying to act as an accrediting agency without the infrastructure needed to support and continually maintain that participating restaurants  are in fact adhering to the guidelines.  The NFCA called this out on the conference call stating they were relying on diners to report back on their experiences at credentialed restaurants as they just didn’t have the capacity to take this on themselves.

My friends over at 1 in 133 have started a petition to Ditch Amber and I encourage all Celiacs to make their voices heard by signing the petition to help the NFCA realize the error of its ways.  Cynthia Kupper, Executive Director of the Gluten Intolerant Group (GIG) wrote a tremendous open letter to Alice Bast, Executive Director at NFCA which is definitely worth reading and makes some really excellent points.  We, as a community, need to come together on this one because there is already far too much confusion out there when it comes to Celiac disease as the general public is constantly bombarded with the gluten-free FAD vs. the gluten-free reality that is our lives.

Update: May 16, 2012

I received an e-mail from the NFCA yesterday evening that provided additional detail on their GREAT Kitchens credentialing program and to be completely transparent and allow for both sides of the issue to be heard I am sharing it with my readers.

From Jennifer North, Vice President, NFCA:

We are in the process of rolling out our expanded GREAT Kitchens training program, which will be replacing the 90-minute GREAT Kitchens program that we currently have on celiaclearning.com.

We also provide on-site training and consulting (that integrates gluten-free training into a restaurant’s existing training program).

The new training will have five topical modules, PDF checklists and manual and a variety of other tools. We’ve launched our Ingredients module and the remaining modules will be released in a beta version, one by one, over the next 4-6 weeks.

In order to be eligible for the designations, restaurants completing the online training must also complete the appropriate checklists, sign an Agreement of Gluten-Free Intent (which is different language for each designation), submit a sample menu, have a Complaint Policy in place and get a passing score on the corresponding test. The modules are:

  • Ingredients
  • Front of House
  • Back of House
  • Gluten-Free Guests
  • Special Diets Overview

Restaurants engaging in training outside of the online program must also complete these processes, or the equivalent.

I thank the NFCA for providing additional details regarding the program.  I also had a few additional questions regarding the additional detail they provided that I have e-mailed to the NFCA and will post the answers as soon as I receive them.  Stay tuned.  Here’s what I asked:

  1. Could you please explain the method of administration and time commitment for restaurants for both the Amber and Green designations?
  2. Are the on-site training and consulting services you referenced add-ons and not a required part of the formal credentialing process?
  3. How is the credentialing of franchises handled? Must each employee at each location take part in the formal training process and subsequent testing and how is this tracked and certified? If not, how is this handled?
  4. Unless a restaurant utilizes your in-house consulting option there is no on-site visit made to any of the restaurants applying for credentialing?
  5. I know that the NFCA mentioned that it is relying on consumers to help monitor participating restaurants via several mediums. After credentialing has been awarded, is there no formal check by the NFCA to ensure that restaurants are complying? How often must a credentialed restaurant re-certify to maintain their designation?

May Is National Celiac Awareness Month

Tuesday, May 1st, 2012

As many of you know May is National Celiac Awareness Month.  While many of us champion awareness throughout the year, it is nice to have a designated month to help draw increased attention to our cause.  This year I was once again invited to be part of the National Foundation for Celiac Awareness (NFCA) annual campaign of guest bloggers to get the word out over on the NFCA’s blog.  This year’s theme is KISS – Keep it Simple and Safe and features 16 bloggers talking about four main themes (one per week) with each day within those weeks having a specific focus.  We will each be offering five tips related to our topic.  There is actually a ton of great things happening over at the NFCA this month ranging from online events to giveaways to local events around the country so be sure to take a look to see what’s on the calendar.

The Daily Focus is as follows:

  • Monday – Cooking/Baking Gluten-Free
  • Tuesday – Nutrition/Wellness
  • Wednesday – Raising a Gluten-Free Kid
  • Thursday – Dining Out Gluten-Free
  • Friday – NFCA Resources You Should Know About

 

Here’s the detailed list of bloggers participating and the weekly line-up:

Week 1: Just Diagnosed (April 30-May 4)

  • Anne Byrn of The Cake Mix Doctor – Reading labels and cooking with boxed mixes
  • Shirley Braden of gluten free easily – Avoiding hidden gluten
  • Kathleen Reale of Be Free for Me – Talking to your child about celiac disease
  • Lisa Garza of Gluten Free Foodies – What questions to ask when dining out
  • NFCA – Discover NFCA’s Getting Started Guide

Week 2: Getting the Hang of It (May 7-11)

Week 3: Hitting a Roadblock (May 14-18)

  • Diane Eblin of The WHOLE Gang – 5 tips to get out of a food rut
  • Alisa Fleming of Go Dairy Free  – First gluten-free, now lactose intolerant? 5 tips to becoming a dairy-free diva
  • Wendy Kaho of Celiacs in the House – Gluten-free challenges at school
  • Michael De Cicco-Butz of Gluten-Free Mike – Traveling while gluten-free
  • NFCA – 5 resources to handle life’s hurdles

Week 4: What’s Next? (May 21-25)

  • Amie Valpone of The Healthy Apple – Publishing your gluten-free recipes
  • EA Stewart of The Spicy RD – Healthy gluten-free foods you’ve never heard of
  • Katie Chalmers of G-Free Kid – 5 tips to empower gluten-free kids
  • Carrie Forbes of Ginger Lemon Girl – Starting a gluten-free dining group
  • NFCA – Ready to fundraise? Here’s how to start

As you see from the list, I am in very good company indeed and know that I am looking forward to seeing what tips my fellow gluten-free blogger have to share.

NFCA Restaurant Credentialing Program

Wednesday, April 25th, 2012

I was invited by my friends at the National Foundation for Celiac Awareness (NFCA) to take part in a virtual press conference with other gluten-free bloggers and publications as they launched their enhanced GREAT restaurant credentialing program.  I found the call to be very interesting and it was helpful to hear first hand and ask questions about the NFCA GREAT restaurant credentialing program.

Essentially the new credentialing will designate participating restaurants by either an Amber or Green designation dependent on the level of training and implementation of certain protocols associated with each level.

While the NFCA is still in the early days of the program rolling out they did mention that the actual policing and feedback on participating establishments will come from the Celiac community itself via various communication methods.

Here is the press release detailing the credentialing program in more depth.  The NFCA is seeking feedback on the program so please feel free to comment here or send me an e-mail if you have any questions, comments, or suggestions and I will pass them along to the NFCA.

 

What Better Way to Start May Than With The NFCA?

Sunday, May 1st, 2011

May is Celiac Awareness month and my ever-fabulous friends over at the National Foundation for Celiac Awareness (NFCA) are having a Blogger a Day series the entire month to not only help to raise awareness for Celiac  disease but to also highlight some great resources for those living with Celiac disease to turn to.

I am honored to have been selected as the first in this series to help kick-off what I am sure will be a fantastic series and I know that I am looking forward to learning more about the 30 others that will be featured throughout the month.  I mean can how can you go wrong with a cavalcade of Celiacs?

While this is a great way to help raise awareness and show how divers the Celiac community is, I wanted to also bring to light that every month is Celiac Awareness month at the NFCA.  They are truly a great organization that work tirelessly throughout the year to help make life as a Celiac easier for all of us.

Whether it is educating restaurants, business, and professionals through its Gluten-Free Resource Education and Awareness Training (GREAT) program or throwing one heck of a gluten-free bash in Philadelphia at its annual Appetite for Awareness (read all about my experience at last year’s event Part I and Part II), they are constantly bringing Celiac awareness into the spotlight.  You can read all about what the NCFA has been up to this past year on their Web site not to mention they have quite a few great things on the near horizon.

But this is really just the tip of the iceberg and I encourage you to spend some time on their Web site and peruse all of the great information that they have compiled.  It’s all there from helpful resources and webinars to personal stories on other’s journey with Celiac disease.

I am happy to count the NFCA as friends and thank them for all that they do to help raise awareness every day for Celiacs across the country.

My GF Homage To 2010

Friday, December 31st, 2010

Okay, so I know it is somewhat cliché to do a year-end round up of top picks for the previous 12 months.  So rather than doing a Favorite Things post, I thought I would just revisit some of the gluten-free places, organizations, and products that made an impact on me in 2010.  I chose ten – I am a bit OCD and it seemed like a good solid number – things that made my gluten-free journey a bit more delicious.  They are listed in no particular order and if a product is not on the list it does not mean I am still not a fan.  This list is comprised of some new items that came across my path in 2010 that I would like to re-visit with you in my last post of 2010.  So here we go…



De Rosa’s Natural Fine Foods: This Staten Island, New York company has perfected the heat-and-eat gluten-free Italian meal.  From Stromboli to calzones to chicken marsala – De Rosa’s has it all and they are all fabulous.

Sheffa Foods Snack Mixes: Completely new to me and a very pleasant surprise.  These crispy treats are a unique mix of nuts and seeds paired with sweet or savory goodies – perfect for cocktail time.  Their salad topper is also out of this world.

The Melting Pot Restaurants of Metro New York: Who knew that  a franchise could do gluten-free so well?  These locations in Darien (CT), Westwood (NJ), and White Plains (NY) offer unique (and delicious) gluten-free options for every course.  There is even gluten-free cheesecake and brownies to dip in molten chocolate for dessert.  I mean, how can you go wrong?

The National Foundation for Celiac Awareness:  I was able to take part in their fabulous Appetite for Awareness 2010 in Philadelphia which set the bar for gluten-free events.  Not only does this organization do great things to help further the recognition and understanding of Celiac disease they provide great opportunities for Celiacs to learn, mix, and mingle throughout the year.

Gluten-Free Bisquick:  Thanks to my friends at General Mills for making a gluten-free version of an old kitchen staple that is every bit as good as the original – just sans gluten.  Fresh pancakes once again became a staple in my weekend breakfasts.

Ellie’s Country Delights Stews: Based on the far East End of Long Island, New York (my childhood home) Ellie makes quite possibly the best thing you will ever pour out of a jar.  These are wholesome stews that are so versatile across a range of recipe uses.

Schär: I have been a long-time fan of all their products but their gluten-free par-baked baguettes were a true stand out this past year for me.  Just heat and eat.  Fresh, crisp, hot gluten-free bread straight from the oven. 

Happy Belly Bags: What’s not to love about gluten-free goodie bags that address not only gluten-free but a range of food allergies.  These are perfect to ship for a variety of occasions and the variety of gluten-free items available was amazing.

Rudi’s Gluten-Free Breads: Three varieties of great bread that really caught my attention this year.  Their Cinnamon Raisin bread is simply out of this world – proving that great ingredients make great products.  They also have a great cause effort going at the moment with the NFCA.

Pizzeria Uno’s Chicago Grill: I have never been a fan of chain restaurants but have to say that Uno’s gluten-free menu was an astounding surprise that I came across this past summer.  It is so nice to be able to pop-in, grab a gluten-free beer, and pizza.  Oh, and the gluten-free pizza is actually really good.

Here’s wishing everyone a healthy and fabulous gluten-free 2011.

Gluten Free in Philly, Part Two

Monday, November 1st, 2010

I have long been impressed with what the National Foundation for Celiac Awareness not only stood for but actually did to help those of us with Celiac disease live a full and fabulous life.  So you can imagine my giddiness when months ago I received an invitation to attend their 2010 Appetite for Awareness in Philadelphia.

First I want to take a moment to thank Alice Bast (who I was lucky enough to dine with at the Rudi’s brunch at the Ritz Carlton prior to the main event) and her phenomenal team most notably the NCFA’s media mavens Whitney Ehret (a.k.a. Director of Communications for the NFCA) and Cheryl McEvoy (Online Content Manager) for not only handling all the details prior to the event but for being truly gracious hostesses (as was the entire team of staff and volunteers).

When I arrived at the Navy Yard I noticed a line of what had to be more than a hundred people making their way into the event – I knew I was in for a real treat.  As  you approached the entrance there actually signs egging Celiacs on to go ahead and eat it all – and unlike many events we actually could in fact eat it all and let me tell you – I felt like I did try to eat it all for days after the event.

When you walked into the massive space there were five distinct areas: a children’s section which was also fun for adults; a product tasting section that spanned both sides of the space; a chef demonstration area; the restaurant tasting section; and yes Virginia, a gluten-free cocktail/beer garden.  It was truly like walking into a fabulous gluten-free parallel universe.

I was greeting by the ever-fabulous Whitney from the NFCA who presented me with materials about the event along with a bag of swag featuring items from many of the vendors at the event.  It made for a good start because, somehow, throughout the rounds I made the bag continued to grow as I found new and exciting gluten-free products to bring to my readers.

There were three chef demonstrations throughout the event (which took place at the on-site Drexel Education Center): Monica Glass from 10 Arts at the Ritz Carlton; Georges Perrier from Le Bec-Fin; and Silvana Nardon, former editor in chief at Every Day with Rachel Ray and author of Cooking for Isaiah

As I made my way around the event I met many old friends and made many more new ones.  There was such an amazing sampling available from companies and restaurants that it was nearly impossible to try them all (notice I said nearly).  One of the most unique was the Dietz and Watson Deli that featured hoagies on bread from The Grainless Baker.

In the restaurant section there was an amazing array of Philadelphia area chefs preparing a smorgasbord of different items for attendees to sample.  You can view the complete list of participating restaurants on the NFCA Web site archive of the event but such great locales as: Bar Ferdinand; Buddakan; Le Bec-Fin; Le Castagne; The Palm; and Zahav

The vendor area was equally impressive with many old favorites and new finds.  I of course ran into the fabulous Jill Brack from Glow Gluten Free who is always so much fun to hang out with and I am holding personally responsible for my weight gain as I eat through boxes of her cookies at a time J.  I also ran into  Andrew Itzkowitz from Shabtai Gourmet – who presented me with their new Kosher Award Winning Yidels (think gluten-free Yodels with REAL ingredients).  He is just an all around great guy and so passionate about his products – well, when they taste like his it is hard not to be passionate.  There was something for everyone including some great new finds of soft pretzels from Dutch Country Soft Pretzels; baked goods from Sweet Freedom; and fabulous brownies from French Meadow Bakery.

The Bear Garden and Cocktail area was a welcome refuge from the hubbub of the event and a great place to catch one’s second wind.  The cocktails and beverages were all complimentary and, of course, gluten-free.  My cocktail of choice was the Boyd & Blair vodka with a bit of tonic and lime – a new brand for me but soon to be a regular.

The entire event was so well-planned and the NFCA’s staff and volunteers were all so helpful and welcoming it was most definitely the gluten-free event of the year.  I know where I will be next October and am eagerly looking forward to what the NCFA has in store for the next Appetite for Awareness – though something tells me I will be seeing my friends at the NFCA well before the next Appetite for Awareness.  My sincere thanks to the NFCA for inviting me and for all they do to raise awareness of Celiac disease.

Gluten Free in Philly, Part One

Sunday, October 31st, 2010

Last Sunday, October 24th, I had the privilege of being invited to two fabulous events in Philadelphia – a decadent gluten-free blogger brunch at 10 Arts in the Ritz Carlton hosted by Rudi’s Gluten-Free followed by the National Foundation for Celiac Awareness 2010 Appetite for Awareness.  So, on an unseasonably warm fall day, I trained it down to Philadelphia from NYC.

When I arrived at the Ritz Carlton, I made my way to the 10 Arts restaurant to find Doug Radi, Vice President of Marketing at Rudi’s along with two great PR representatives from Linhart PR, Elexis and Dayna who I had had the pleasure of e-mailing with prior to the event.  I had actually been contacted a few months back to trial Rudi’s bread before its release while at the Fancy Food Show in NYC but due to some technical glitches with my Web site I sadly missed the opportunity.  When I received the invite to the brunch I knew I simply had to go.  I had actually not t morning’s menu choices.  On offer was a choice of Cinnamon Raisin French Toast or Scrambled Eggs with bacon or sausage, and of course a basket of Rudi’s breads.  I of course opted for the French Toast and would not be disappointed.

The private dining room was beautifully laid out with place settings that featured the morning’s menu selections.  On offer was a choice of Cinnamon Raisin French Toast or Scrambled Eggs with bacon or sausage, and of course a basket of Rudi’s breads.  I of course opted for the French Toast and would not be disappointed.

Before the meal we had the opportunity to mingle and chat with the other invited guests and there was a great mix of gluten-free and food bloggers along with staff from the NFCA itself and it was really nice to finally be able to put faces with names that I had been corresponding with for months prior to the event.

When we sat down for brunch I was lucky enough to share a table with Elexis from Linhart PR, Alice Bast from the NCFA, Paul Biscone, Erin from Gluten-Free Fun, and a new (to me, though not the food community) friend Jennifer Iannolo who had just launched the great Zenfully Delicious Web site and was behind the established Gilded Fork.  Doug Radi welcomed everyone to the event and gave a great overview of Rudi’s history and their journey to make a great gluten-free bread that tasted like, well bread.  It took more than 200 formulations to get it right and boy did they ever.  Pastry chef at the Ritz, Monica Glass also greeted guests and talked about being a gluten-free pastry chef who made both gluten-free and regular desserts for diners.  The nice thing to know if you ever dine at 10 Arts is that Monica will normally have two desserts that are gluten-free for GF diners (though no guests would be able to tell the difference).  Finally Alice Bast, President of the NFCA greeted everyone and talked about the NFCA and particularly their relationship throughout the development process with Rudi’s.

When the main courses arrived our table skewed towards the gluten-free French Toast though a couple of people opted for the eggs.  The first thing that struck me about Rudi’s bread was the consistency.  It was wonderfully soft and spongy and instantly reminded me of my pre-Celiac diagnosis days.  The Cinnamon Raisin bread used was not overly sweet but had just the right balance of sweetness coupled with the spicy bit of cinnamon.

At the end of the meal Chef Monica  (of Chef Moni as she is known) sent our two sampling of her gluten-free desserts for all of us to sample – a mini pumpkin macaron (the real deal) and a chocolate brownie – both of which were out of this world.

We all left with a fantastic swag bag courtesy of Rudi’s complete with a full sampling of all of their breads which I am presently eating my way through :-) . I truly had a great time at the brunch and send my sincere thanks to Rudi’s for inviting me.  Next up, Part 2: The NCFA’s Appetite for Awareness 2010.

NCFA’s Appetite for Awareness in Philadelphia

Wednesday, October 20th, 2010

I was lucky enough to have been invited by the NCFA to attend their Appetite for Awareness Event 2010 in Philadelphia this coming Sunday, October 24, 2010.  I am truly looking forward to what promised to be a wonderful afternoon filled with delicious goodies and the opportunity to network with my fellow Celiacs.

If you are in or around the immediate area why not stop by?  You can find full details including ticket information on the NCFA Web site.

I will also be attending a special event before the Appetite for Awareness so stay tuned to learn more about that.
Hope to see you in Philly.

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