Posts Tagged ‘celiac disease’

National Celiac Awareness Month

Thursday, May 2nd, 2013


With National Celiac Awareness Month now upon us, I thought I would take the opportunity to do a few posts throughout the course of the month to help raise awareness.  Well, that is only partly true — I really want to set the record straight.  You see lately it just seems that everyone and their mother is either going gluten-free, thinking about going gluten-free, lost weight going gluten-free, self-diagnosed themselves, is kind of Celiac but still eats gluten…you get the idea.

What I was hoping to write-off as merely a fleeting fascination of public interest (thanks to mainstream media and the explosion of gluten-free products) appears to still be going strong — and this is what I find pretty darn scary (and, to be frank, annoying).  So for the month of May I will be trying to clear-up any confusion on what it means to have Celiac disease by sharing a few posts that will hopefully do just a tiny bit to set the proverbial record straight.

I have also adopted the hashtag #iamnotafad that I’ll be tagging my gluten-free tweets with for the duration of Celiac Awareness Month (please feel free to use it as well).  I would also like to point out that the month is not Gluten-Free Awareness – it’s Celiac Awareness.  Say it with me.  C-E-L-I-A-C Awareness.  Nowhere in there do I see gluten-free.  For you see, Celiac disease is an autoimmune disorder and the prescription is to remove all gluten from your diet — there is no choice involved.  If we as Celiacs can get just one person to really understand what it means to be Celiac — and I mean really understand — then that’s one less person we have to worry about.

So to all my fellow Celiacs — Happy Celiac Awareness month.  To the fad contingent, please just keep on walking by — this is not your month, this is not your disease, this is not your gluten-free. Gluten-free IS your CHOICE. I don’t have that luxury.

Living Gluten Free from a Celiac P.O.V.

Friday, November 30th, 2012

I thought as the year winds down this would be a great opportunity to wax nostalgic and look back on what being gluten-free has really meant to me, the changes to my health, and the changes to the gluten-free landscape.  These are my personal realities that I have experienced as I navigated along my Celiac journey…and believe me it has been and still remains very much a journey.

As is the case with many Celiac diagnoses, I was diagnosed only about twelve years or so ago after more than twenty years of misdiagnoses.  It was always a case of having a funny tummy or acid reflux or a really fast metabolism that no doctor or medicine could seem to fix.  The worst part was not knowing when I would have a reaction to gluten because I had no idea it was the gluten that was the root of my problem – and believe me there were some very interesting situations.

I have to be completely honest, I had not even heard of Celiac disease before my diagnosis.  Gluten meant nothing to me and it was like the first day of school all over again when I found out I actually had Celiac disease.  It was a very different time for Celiacs just a decade ago.  Resources were not that easy to come by, forget about really great tasting products, and support…we’ll good luck with that.  Cue the violins…It was actually a very lonely beginning to my gluten-free journey and a lot of the learning I really had to find out for myself.  It was definitely a period of trial and error as I struggled to get a handle on this disease.  I also happened to become hyper-allergic to shellfish around the same time I was diagnosed Celiac so my eating habits had to undergo a massive re-vamp in a very short period of time.

Reality #1: If you think that you’ll lose weight, think again.
I went gluten-free out of necessity – there just was no other way to lead a normal life as a Celiac without it.  Now, throughout high school and college I was wonderfully thin and the sample-sized racks at stores were my best friend – I mean being a size 27/28 waist and weighing about 150 pounds, the world was my oyster – or so I thought.  What I didn’t realize is that, while perfectly healthy, I looked somewhat sick – I was actually too thin for my age and height.  I thought it was fantastic that I could eat whatever I wanted in any quantity and never gain a pound – never.  I ate like food was going out of style – I simply loved food and once college and grad school came about, let’s just say my eating habits were less than ideal.  I just thought I had a super-fantastic magical metabolism and didn’t ask any questions.  Others, however, did start asking questions – like Did I have an eating disorder?  I can’t blame them for being concerned but I would actually get angry when constantly asked and I knew I was doing nothing out of the norm.  Little did I know that my body was not absorbing nutrients correctly and I was severely damaging my digestive system without even knowing it.

So fast forward to removing gluten from my diet but replacing gluten-filled foods with their gluten-free counterparts.  Okay, at the time of my initial diagnosis there was definitely a lack of good gluten-free products but beggars can’t be choosers and quite frankly I was happy with mediocre bread and pasta vs. nothing.  However, the doctors failed to mention that gluten-free replacements often have twice (or more) the calories and carbohydrates of their gluten-filled counterparts.  This coupled with the fact that once you remove gluten from your diet and you begin to once again absorb nutrients correctly EVERYTHING changes.  Add-in the introduction of more and more delicious gluten-free products hitting the market and it makes for a very weighty combination.  Remember that super slim guy who could eat whatever he wanted?  Well, he fast became a rather large (read gained about 50 pounds or so) version of his previous self.  Worst of all it seemed to just happen without any real warning.  Lesson learned.  It fast became all about moderation and becoming more cognizant of product label details vs. just checking for gluten.

Reality #2: It’s Your Life, Live It.
Perhaps the most common thing that I hear when people are first diagnosed it that they’ll never eat out again.  Can I understand their thinking – absolutely!  It is overwhelming (to say the least) when you suddenly have to change your lifestyle – particularly after decades of doing whatever you wanted.  The good news is that with increased diagnoses comes increased awareness (and yes, we still have a way to go).  I remember trying to explain what it meant to be Celiac when traveling or eating out and getting blank stares.  Now when I dine out more often than not when I say I cannot have gluten I am met with Oh, you have Celiac?  Does this mean that I am ever complacent?  Nope.  I still go through my whole spiel of gluten and shellfish requirements each and every time I eat out even if I have been to a place one hundred times.

I was always a traveler and have been jetting around the globe since I was a toddler so naturally when I was diagnosed I wondered what this would do to my love of travel.  The good news is that it doesn’t stop me in the slightest.  I still go where I want, when I want and have never gone hungry in any part of the world.  Have I had to make concessions – of course – but gluten-free and Celiac disease have become more and more recognized around the globe so things are most definitely getting better.

Reality #3: It’s a pretty delicious gluten-free world out there.
The gluten-free product landscape has truly exploded over the years since my diagnosis and there is now pretty much a gluten-free replacement for anything you could want.  Over the past few years alone there has been an explosion of gluten-free companies and more mainstream companies launching new gluten-free products.  I no longer have to feel like a culinary outcast because I can now have a gluten-free version of some of my favorite gluten-filled options.

It’s also great that some more mainstream companies are now providing gluten-free products but I absolutely love that there are more and more smaller start-up type companies out there that are crafting more artisanal gluten-free options.

A trip to my local supermarket that once yielded perhaps one or two gluten-free items now features an entire aisle of gluten-free goodies.  Gone are the days where I would have to visit several small, out of the way stores to pick up a few items.

Restaurants are also catching on and it is nice to no longer be relegated to the special category that was once met with stares and confusion.  Even the most major of chains either have a gluten-free menu or provide allergen information to their patrons.  There has also been an explosion of restaurants offering at least one or two dedicated gluten-free items for their guests as well, in my opinion, an increase knowledge on the part of management and service staff to not only deal with Celiac but food allergic diners in general.  Is anything ever going to be 100% – absolutely not and we as Celiac or food allergic (or both) diners must still remain diligent in our asking of questions and getting staff to understand the importance of what our requests mean.  Even if I am a regular at a particular locale, I still go through my celiac and allergy spiel to add, at least in my own mind, an added level of comfort when dining out.

Reality #4: Gluten-free is not a fad, it’s a way of life.
This is a particular sticky point with many Celiacs, myself included.  While it is certainly great that gluten-free has really mainstreamed there is a big difference between those who are gluten-free by choice and those of us that are gluten-free out of necessity.  Don’t get me wrong, if you don’t have Celiac disease or a gluten-intolerance and want to be gluten-free by all means please do so.  I am a firm believer in doing whatever makes you a happy camper.  The problem lies with many people labeling gluten-free as a fad, because for many of us it is a required way of life.  This was bound to happen given that gluten-free has essentially mainstreamed now and people are talking about it more and more.   And this is fantastic because the more people talk about it the more front of mind it becomes with the larger population.  It is a double-edged sword because, as is the case with any celebrity, it comes with the truths and the half-truths.

My truth is that I have a disease that can only be corrected by the exclusion of gluten from my diet.  If I could eat normally again I would do it in a heartbeat.  Do I miss being able to eat absolutely everything (and I mean everything) that I want – sure do.  Do I miss the constant pain and health issues I was subject to for more than twenty years?  Absolutely not.

Reality #5: It does get easier.
In the more than twelve years since my diagnosis I have gone from complete and utter confusion to well seasoned Celiac in a relatively brief period of time.  It is amazing how quickly you completely change your lifestyle and have it become the new normal.  I am living proof that someone can go from zero to relative expert over time.  Will it be a challenge?  Yep.  Will there be times you’ll make mistakes?  Yep.  Will you sometimes feel like there is no way you’ll be able to live a full life?  Yep.  I felt all of those emotions and more.  I’ve fallen on my face on this journey and still have hiccups that occur.  Hey, it’s just how life goes sometimes.  So when you are having a tough time or feel like you’re all alone on this journey look around because there’s 1 in 133 that is in exactly the same boat.

I don’t think I have ever really chronicled my experience as a Celiac in a single thread like this before and I found it to be actually rather therapeutic.  Are there way more than five personal realities for me, absolutely, but the five I discussed are my main ones.

Please feel free to comment and share some of your own personal realities.  While some realities might be true for many, we know that Celiac affects people in different ways.  The one thing that I do know is the same for all of us is that we are a pretty tight knit group and without my Celiac diagnoses I would not have met so many fascinating people out there — each of whom bring a great uniqueness to their approach on living life gluten-free — and for that I am truly thankful.

Restaurant Review, Rodizio Grill

Saturday, June 9th, 2012

I was invited by my friends at Rodizio Grill to check-out their new Stamford location for dinner one evening.  Now, I typically am not a “chain restaurant” kind of guy but when I found out that this location was owned by the same owner of the Tri-State area Melting Pot locations I knew that this experience would be different than walking into any old chain.  You see, my two experiences at the Melting Pot of White Plains were absolutely amazing from a food allergy and Celiac perspective.  These are locations that, while part of a chain, go above and beyond to make sure that all diners, regardless of their dietary restrictions have a safe and delicious experience.

Now the Rodizio Grill was appealing because I am a huge fan of Rodizio-style dining where it is basically a bacchanal of assorted meats that just keep coming and are carved table-side for guests to enjoy.  Rodizio dining also means a lavish salad bar with are range of hot and cold selections that could be a meal all on its own.  But perhaps my favorite part of Brazilian dining is quite possibly the smallest – the Pão de Queijo.  These are absolutely decadent little cheese rolls that are served warm and they are gluten-free by design as they use tapioca flour as their base.

We arrived at the restaurant, which was already buzzing with guests, and were warmly greeted and shown to our table.  Perhaps the most astonishing thing was that I was immediately presented with a printed out multi-page version of all of the menu items that were arranged on an allergy-matrix so I could easily scan for items that would not be suitable.  Quite frankly, there was only a few items that were off limits.  I knew exactly what I needed to avoid at the salad bar, which meats had sauces that contained gluten, and what desserts would be viable options for me.  This was quite possible the best allergy guide that I have ever seen and addressed a range of ingredients that could cause problems for diners.

We were then presented with three appetizers consisting of fried polenta, fried bananas, and my beloved Pão de Queijo.  The polenta and Pão de Queijo arrived on the same plate and the bananas on their own.  Mike, the manager on duty – who was amazing by the way – quickly explained that while the fried polenta and Pão de Queijo were gluten-free, the bananas were not.  When I asked about the fryer situation he, without missing a beat, explained how there are dedicated fryers that only fry gluten-free items and the bananas (which had a coating) got their own.  This was the same experience I had at the Melting Pot where servers and staff were ALL extremely knowledgeable on food allergies and didn’t have to go get answers – they already had them.  It really makes such a huge difference when you can sit back and enjoy a meal because you know that the staff are looking out for you.

I first made my way over to the salad bar and loaded my plate with a selection of items and all of them were delicious.  I was seated near the salad bar and could not believe how often staff came by to make sure nothing was running low and constantly refreshed the offerings.  The fun part about Rodizio-style dining is that each table gets a wooden cue that is red on one end and green on the other.  When you are ready for the parade of meat (and fish) to begin you simply turn it to green and let the main course commence.  Once you go green the gauchos begin to arrive with their offerings on large skewers and slice-off whatever piques your interest.

Now on to the main course…

I was amazed at the variety of options that were available.  There was everything from various cuts of beef, to chicken (most were not gluten-free because of the marinade), turkey, pork, lamb, fish, and even grilled whole pineapple – there was even chicken hearts on offer but I did not see many takers on that one.  If you check out the menu online you’ll see that different locations have different special offerings depending on where they are located and the season.  I pretty much tried everything that came out and I have to say that all of the meat was well-prepared and really quite flavorful.  The beef cuts were juicy and tender and had just the right amount of simple seasoning to allow the meat to stand on its own.  The nice thing about this style of eating is that while you will definitely be full at the end, you are eating small portions over a longer period so you can really sample a range of options over the course of your meal.  Not to mention you can eat as much or as little as you like.

For dessert I tried the Brazilian Cream which is a blend of ice cream with your choice of flavor (I had coconut) mixed in to make it more like a soft-serve custardy treat.  It was really very good with just the subtle flavor of your desired mix-in.  Next time I will definitely be giving the flan a go.

If you are in the Stamford area (it’s just a quick hop from NYC or Westchester) I would definitely recommend giving this Rodizio Grill a try.  Their attention to food allergic diners does not waiver and the service was really top-notch.  Now for the best part…

My friends at the Stamford Rodizio Grill are giving TWO lucky readers a $50 gift certificate to try Rodizio Grill on your own.  Entering could not be easier – just follow the instructions below. Completing each task will earn you a maximum of twenty five entries. Not on Facebook or Twitter? Just click Use Your Email to enter. The two lucky winners will be selected at random on Monday, June 18th.  Please note: The gift certificates are only valid at the Stamford location.

Update: 6/18/12
The giveaway is over. Congratulations to Peter S. and Simran S. who each will receive a $50 gift certificate to Rodizio Grill in Stamford, Connecticut.

Lima GF Travel Guide, Part Three, The Food

Sunday, May 27th, 2012

This is the final installment of my Gluten-Free Guide to Lima.

Lima has been called the Culinary Capital of the Americas and let me be the first to tell you that it definitely lived up to the title on my recent visit.  Now, I was first a bit apprehensive because of its proximity to the Pacific Ocean which meant that fish and shellfish would likely be plentiful and featured at restaurants throughout the City – and given my shellfish allergy this always makes me a bit antsy.  I mean the City is famous for it ceviche after all with entire restaurants dedicated to this popular dish.  I need not have worried though as Lima’s amazing culinary scene has quite literally something for everyone and finding gluten- and shellfish-free options.

Now I might speak seven languages but unfortunately Spanish is not one of them – I know, I know.  More often than not when I travel I speak the local language but this time I would be outside of my comfort zone.  I did however plan in advance and found some great food allergic allergy cards that I ended up printing out and laminating with my shellfish allergy requirements on one side and Celiac disease on the other.  I had a native Spanish speaker first look them over to ensure that they conveyed exactly what I would need to communicate to servers and kitchen staff that I would encounter on my journey – and they did.  Best of all, they were available free online.  Being Italian both me and my mother speak Italian and were actually able to understand far more than I had anticipated being able to when spoken to in Spanish.  Hey, you use everything you can when you have to.

So on to the food…

Prior to departure I had asked friends and colleagues who had been or lived there to recommend the not to be missed places that I needed to visit.  I managed to compile quite the list but with only six nights and an aggressive sightseeing agenda I had to narrow it down and decided upon place that would give a taste of what Lima had to offer.  Also, as many of you know, evening meals were often dictated by how tired we were from the day’s outings – and we were really all over the place trying to take in as much as we could.

Breakfast was a grand affair that we took daily on the roof of our hotel – the Orient Express Miraflores Park Hotel – and was by far the best thing the hotel had to offer (you can read more about that here).  Breakfast was an impressive of hot and cold buffet items with made to order options offered just as easily.  Basically you could have anything and as much as what you wanted.  Fresh fruit, freshly squeezed juices, and fresh baked goods were standouts but perhaps the most exciting thing for me was the inclusion of gluten-free bread that was on offer.  It was a rather unique bread, labeled only as “sin gluten” that was thicker and more solid than your traditional gluten-free bread and has a bit of sweetness to it.  I was most welcome and paired wonderfully with the eggs prepared a range of ways that I would delight in each morning.  I am typically not a big breakfast person but enjoying a full-breakfast while traveling affords me the opportunity to not have stop during the day for a large lunch allowing more time for sightseeing.  It makes it much easier to just grab something light while on the move to tide you over until dinner.

Speaking of dinner, here are a few memorable meals I enjoyed while in Lima.  I also want to point out that I was never glutened nor did I have to use my Epi-Pen for my shellfish allergy which is always a good thing.  Bon Appétit!

On our first evening in Lima we decided to walk to the nearby Larcomar Center which is an impressive upscale outdoor mall that is literally built into the cliff side.  It offers a range of shopping and dining options – not to mention the most amazing views of the coast and Pacific Ocean.  We walked around and stumbled upon what would turn out to be an amazing Italian restaurant Vivaldino.  I have to admit I was a bit hesitant because they did offer quite of bit of shellfish-based options but my concerns were quickly put at ease when I handed our waiter my dining card, which he read completely, and then provided tremendous advice on what would and would not work.  I opted for a homemade risotto with porcini mushrooms and Parmesan cheese that was cooked to absolute al dente perfection as my main course and my starter was a simple tomato and mozzarella salad drizzled lightly with olive oil and finished with fresh basil.  My mother started with a salad of Brie, pears, sun-dried tomatoes, and arugula which she enjoyed.  Her main was a duck magret with wild berry sauce with Portobello mushrooms, prosciutto, and pears au gratin.  She raved about this dish which was beautifully presented to boot.  Service was flawless even despite the restaurant being quite busy. We would actually end up eating here another evening with me ordering the risotto again – it was just that good.  We had a different server but ours was there serving a large party and stopped over to explain my allergies (he remembered) to our new server – very nice indeed.

Our second evening I had our hotel make a reservation at a restaurant that came recommended from a colleague – La Carreta.  This is Lima’s proverbial temple to all things meat and it did not disappoint.  As you can imagine this was not a problem to do gluten-free.  I did of course hand my dining card to our waiter who once again read it completely and, in this case, was able to advise on the potential for shellfish cross-contamination, which was minimal – but all of my requirements were noted and conveyed to the kitchen.  I started with an appetizer of thick-sliced grilled bacon accompanied by a wonderfully sweet and tart berry sauce.  This was, in a word, amazing.  The smokiness of the back brought to the next level by the grill and paired perfectly with the sweetness of the berry sauce that was not at all overpowering and allowed the bacon to really shine.  The portions at this place are enormous so sharing would definitely work.  My mother started with grilled Chinchulines (intestine) that was presented crackling away over coals when presented at the table.  For our main courses, I had the young filet which was pretty much an entire small tenderloin that could have easily fed three hungry people.  It was of course grilled to perfect medium with minimal seasoning allowing the true flavor of the beef to shine through.  My mother opted for the prime rib which was more of a large rib eye.  It too was cooked to perfection but was a bit fattier than my mother had expected but very good nonetheless.  We chose a potato rosti, mixed vegetables, and grilled asparagus for our sides – all of which were delicious.  I believe (and my mother confirmed) that I attempted to round-off the meal with a chocolate mousse but was in such a food coma by the end of the meal it has become a blur.

The next evening we were exhausted after an afternoon of power shopping our way across Lima so decided to utilize a complimentary meal for two that accompanied my stay at the hotel restaurant Mesa 18 by Toshiro.  Now, I actually had no intention of using this because I typically steer away from Japanese restaurants as a rule given my shellfish allergy.  While this restaurant is a self-proclaimed Peruvian/Japanese restaurant I was still weary after reviewing their menu.  Due to some issues I had while at the hotel I had a meeting with the General Manager of the hotel who had asked if I tried Mesa 18 yet.  I explained that due to my allergy and Celiac disease I did not think it would be a good idea and he was instant that the restaurant would be able to accommodate.  He was in fact VERY wrong.

One evening, while both tired, we decided to just stay-in and try Mesa 18.  It was a proverbial cluster-fu*k from the moment we were seated.  Our drink orders failed to arrive after two reminders.  I had presented my dining cards to our waiter who was having difficulty understanding – despite them being in Spanish.  Felling a bit uncomfortable I asked for the manager who instead sent another waiter who I can only assume was sent because he had a better handle of English but also took my dining card into the kitchen for feedback.  Well, the hotel General Manager’s assurance that they could work with my restrictions turned into one, yes one, menu item working for me and that was a chicken in a white wine sauce with vegetables and white rice.  Apparently, according to our server, all other meat items, including the filet were pre-marinated in soy sauce which is off limits to me.

Happy that there was at least one thing I could have I was just thankful that I would be eating soon.  Unfortunately when the dish arrived it was completely off-putting.  A questionable looking piece of chicken was presented with cabbage and a few vegetables.  Now, this was not the restaurant going above or making something special – this was actually an existing menu item – which made it even more disappointing.  My mother just had the chicken skewers appetizer with a side of Japanese fried rice.  Both of which arrived cold and were just average at best according to her.  It was an utterly disappointing experience and by far the worst meal I had while in Lima.

The next evening, thankfully, we took-in another recommended restaurant Huaca Pucllana which is located in the actual Pucllana Archeological Zone making for a truly memorable dining experience – particularly at night when the ruins are illuminated.  Be sure you make sure you reserve a table on the expansive terrace which provides sweeping vistas of the ruins.  It was extremely busy when we visited and service started off a bit lackluster but once the staff got going it did get better. Once again my dining cards were read, understood, and even brought to the kitchen.  The menu features a range of options that incorporate Peruvian ingredients.  For my starter I had a Three quinoa salad with “solterito” (fresh cheese, onion, tomato, rocoto peppers, fava beans and corn) which was out of this world.  Lightly dressed with a tangy lemon dressing that played perfectly off of all the fresh, crisp vegetables this was a home run – not to mention the corn was quite possible the largest I have ever come across.  My mother had the green and white asparagus with artichoke tartar, fresh hearts of palm, and basil vinaigrette.  She raved about how delicious this was.  For my main course I had the Grilled tenderloin in a cilantro sauce with potatoes and white rice that did not disappoint.  The meat was cooker perfectly and the cilantro sauce just took it to the next level.  My mother had the Paiche filet (fish from the Amazon) served with yucca and plantain with cocona (indigenous fruit) and aji charapita (spicy peppers) chimichurri.  The fish was cooked to perfection and the sweet/tart/spicy trifecta made for a very interesting flavor combination that my mother said worked extremely well with the mild flavor fish used.  For dessert I had the Chocolate crème caramel with cherimoya (Andean fruit) foam sans the orange croquant that typically accompanied it.  The chocolate flan was decadent and the subtle sweetness the cherimoya foam offered capped off a perfect dessert.

Lima is indeed a culinary melting pot incorporating many of the foreign influences that make the City so amazing.  There is truly something for everyone from the very simple to food courts to fine dining.  If you are less adventurous in the food department there are a host of chains (American and otherwise) but with so many real options it’s best to step outside of your comfort zone while in Lima.  I even scored my beloved Pinkberry while shopping one afternoon that came complete with fresh gooseberries and enjoyed that while my mother indulged in a sugar-free Italian gelato as we sipped espresso.  One thing is for certain, you will definitely not go hungry while visiting Lima and perhaps some of the most memorable times we had on the journey were while talking breaks at the small cafes that dot the City to enjoy a coffee or cocktail while soaking in the true beauty that is Lima.

North American Society for the Study of Celiac Disease Weighs In

Thursday, May 17th, 2012

The North American Society for the Study of Celiac Disease (NASSCD) invited me to take part in a conference call to release their official statement regarding the recent Domino’s Pizza announcement of their new “gluten-free” crust that, just happens not to be suitable for Celiacs.

Unfortunately, due to a scheduling conflict I could not make the call but did want to share their press release with you.  I am in complete agreement with the NASSCD and commend them for taking a stand to help protect those of us for which there is no grey-area when it comes to being gluten-free.

North American Society for the Study of Celiac Disease Comments on Domino’s Pizza ‘Gluten-Free’ Crust Announcement

May 17, 2012 – The North American Society for the Study of Celiac Disease (NASSCD) today announced a call for all restaurants and food manufacturers to properly label gluten-free products to avoid confusion that has the potential to threaten the health of people with celiac disease.  View the statement NASSCD also issued this week.

The move comes after two restaurant chains, Chuck E. Cheese and Domino’s Pizza, last week separately announced new gluten-free food product offerings that provide significantly different levels of safety for people with celiac disease.

Celiac disease is a genetically inherited autoimmune condition that can damage the small intestine, and can lead – if untreated – to further serious complications, including anemia, osteoporosis, infertility and even certain cancers. Celiac disease is triggered by the consumption of gluten, a protein found in wheat, rye and barley.

“We want to eliminate the market confusion that has surfaced recently, provide clarifying facts and information about gluten-free labeling to food manufacturers, and ensure the public’s safety,” said Stefano Guandalini, M.D., president of the NASSCD, and founder and medical director of the University of Chicago Celiac Disease Center. “Additionally, there is too much variance from manufacturer to manufacturer.”

(more…)

Break Away Snacks Organic for Life Bar

Monday, October 10th, 2011

Another travel find that I came across recently was Organic for Life Mixed Nut Medley Bar from Break Away Snacks.  I came across this bar purely by chance as it was in an airport gift shop and I literally picked it up on my way to the gate before boarding a flight.

This particular bar was trail mix-esque — part chewy granola bar, part delicious trail mix.  It was chock-full of peanuts, raisins, sunflower seeds, and almonds.  It was sweetened with the perfect balance of honey and rice syrup.  The bar had a fabulous texture that was crisp given the nuts and seeds but still soft to the bite thanks to the honey.  It had just the right amount of sweetness without being overly sugary.

I am all about portability and love items that I can simply toss into my bag and hit the road with that will travel well and be ready when I need them to be.  Head on over to their Web site and check out their complete product portfolio and to learn more about the company.

New Product Review, Five Star Meat Marinade

Saturday, August 6th, 2011

I recently received a couple of bottles of Five Star marinade to sample.  I am a huge meat eater and I am always on the lookout for fast, easy, and delicious ways to marinade my meat of choice and throw it in the oven.  Five Star marinade meets all of my criteria.  Simply pour the marinade over your meat of choice and toss in the refrigerator until you are ready to cook it.

The marinade has five simple ingredients: vinegar, salt, spices, paprika, and garlic.  You’ll also note what’s not there: MSG, sugar, carbs, preservatives, oils, or fats.  Sometimes simple works best.  I tried the marinade on a couple of chicken breasts and, while you can marinade overnight or days as the bottle notes, I only had a few hours. 

What I love about the marinade is that it has a very unique flavor that is the perfect balance of spiciness with the tangy tartness of vinegar.  Now I am not sure what spices are used as it is obviously a guarded secret but I have not tasted a marinade that had some of the flavors going on that this one does.  Yet, at the same time, the marinade does not take away from the flavor of the meat itself but is rather the perfect compliment.

You can order Five Star right from the manufacturer’s Web site and learn more about the company itself.

What Better Way to Start May Than With The NFCA?

Sunday, May 1st, 2011

May is Celiac Awareness month and my ever-fabulous friends over at the National Foundation for Celiac Awareness (NFCA) are having a Blogger a Day series the entire month to not only help to raise awareness for Celiac  disease but to also highlight some great resources for those living with Celiac disease to turn to.

I am honored to have been selected as the first in this series to help kick-off what I am sure will be a fantastic series and I know that I am looking forward to learning more about the 30 others that will be featured throughout the month.  I mean can how can you go wrong with a cavalcade of Celiacs?

While this is a great way to help raise awareness and show how divers the Celiac community is, I wanted to also bring to light that every month is Celiac Awareness month at the NFCA.  They are truly a great organization that work tirelessly throughout the year to help make life as a Celiac easier for all of us.

Whether it is educating restaurants, business, and professionals through its Gluten-Free Resource Education and Awareness Training (GREAT) program or throwing one heck of a gluten-free bash in Philadelphia at its annual Appetite for Awareness (read all about my experience at last year’s event Part I and Part II), they are constantly bringing Celiac awareness into the spotlight.  You can read all about what the NCFA has been up to this past year on their Web site not to mention they have quite a few great things on the near horizon.

But this is really just the tip of the iceberg and I encourage you to spend some time on their Web site and peruse all of the great information that they have compiled.  It’s all there from helpful resources and webinars to personal stories on other’s journey with Celiac disease.

I am happy to count the NFCA as friends and thank them for all that they do to help raise awareness every day for Celiacs across the country.

Gluten Free Childrens Book Review

Wednesday, March 23rd, 2011

I received a review copy of Mommy, What Is Celiac Disease? by Katie Chalmers and have been meaning to post my thoughts and share the book with you.  Now I am sure you are wondering, hmmm, GFM you don’t have any children.  That’s just it.  Had Katie not contacted me I would have likely not come across the book and I can safely say that would have been a major loss on my part.  You see, yes, it is a children’s book that is both wonderfully written and illustrated but while I was reading it I found that it spoke to all Celiacs no matter where they are in their gluten-free journey.

I remember a time, around my diagnosis, where few had even heard of Celiac disease (myself included) and after my diagnosis it was pretty much a learn as you go experience with quite a few missteps along the way.  Alas, that which does not kill us makes us stronger – and now I feel like a gluten-free veteran.  Sure, there are tons of resources available to the newly diagnosed but as I read Katie’s book I kept wondering how great would it have been to have something like this 10 years ago?  I am certain that even today a Celiac diagnosis can be overwhelming and remains a challenge for both adults and children.  I was diagnosed in my twenties and was often perplexed with what being Celiac meant so I can only imagine how difficult it must be for young children to suddenly be told No, you cannot have what everyone else can

What’s great about Katie’s book is that it does not explain Celiac as a singular experience but rather something an entire family must learn to come together and deal with.  The central message of you are not alone is a powerful one that Katie managed to capture beautifully.  Her focus was not on the taking away of foods but rather a learning experience on what (and why) foods could be safely enjoyed and what a Celiac must also look out for.  The mother in the book quickly offers replacements for some favorite treats and approaches Celiac as something that makes the child special (i.e. bringing their very own cupcake to a friends party) rather than alienating the child and making them feel like they are the odd one out.

I can see this book being great to not only educate children and their friends about Celiac disease but also for various family members and friends who still might not get it yet.  I can think of a few people in my life that could benefit from this book :-) .  It is important for all of us to take a page from Katie’s book in that we are not alone and being Celiac is not limiting but actually empowering and uniting.

Head on over to Katie’s Web site to learn more about her and her book and how to get your very own copy.  She also has some great Celiac information and resources on there as well.

Head On Down To The Shack

Thursday, November 4th, 2010

Quick Note: The E.I. Sugar Shack is now the Swansboro Brew Shack Coffee and Desserts Shop, located where else but in nearby Swansboro. Revised contact information can be found at the end of this post. Same great owner and products and Terri just told me they now offer their dry mixes so you can recreate their delicious goodies in the comfort of your own home.

I always find it amazing that sometimes I come across great gluten-free find in the most unexpected of places.  I have been traveling to North Carolina pretty frequently to visit family and never thought I would be able to find half of the gluten-free options that I have.  From well-stocked stores to fantastic restaurants to bakeries.  Oh, and I am not talking about the larger metropolitan areas but rather the beautiful Eastern Carolina coast.  So, I have been hitting the area from Wilmington up to New Bern looking for great gluten-free finds when I am in the area.

On my last visit I was contacted by a bakery on the gorgeous Emerald Isle to come and sample their gluten-free products.  Actually this bakery does sugar-, gluten-free, and regular items as well.  So one beautiful morning I headed out to the Isle to check out the Emerald Isle Sugar Shack.  I was  not quite sure what to expect as I had driven on the road it sits on many times but never noticed it but Terri, the owner, was so friendly in our e-mail and Twitter exchanges I knew I had to stop-by – oh, and the fact that she mentioned something about a new gluten-free item they were working on.  I was intrigued and quite frankly hungry that morning so was ready to see what they had to offer.

The E.I. Sugar Shack is in a normal strip mall type building just off the road and from the outside you have no idea what you are in for.  When you walk in you are instantly transported into beach mode.  Fun seating areas and decorations make you feel more like you are in a beachside café than a storefront (the actual water is located behind and across the street from the store).  As promised, Terri was there to greet me and took to the display cases towards the rear of the store.  She told me before I came to be sure to tell her exactly when I would be coming because the gluten-free items sell out fast.

The cases were filled with gluten- and sugar-free options as well as items for those with no allergies.  You almost felt like you were in an old time bakery complete with glass covered domes housing samples for all to try.  Terri explained that everything is made from scratch and she experiments with various ingredients to get items to turn out the way she wants.  I ended up purchasing quite a few items to take with me (and some delicious gifts from Terri) and I will talk about those in a moment but the main event had to be something I had never even heard of before – gluten-free or otherwise – CAKE BALLS. 

Yes, you read it correctly.  Sweet little balls of gluten-free goodness enrobed in chocolate shells.  Think petite fours in a more rounded shape.  Now Terri mentioned she was working on the gluten-free versions of these when we corresponded and I was so eager to give these a try.  She said she came across them while traveling and they had a huge following.  Terri had mini samples on the counter and I did not hold back.  From chocolate to carrot cake to Reese’s, I worked my way through the range and each one was better than the next.  I ordered a bunch of the full-sized options to take with me and enjoy later that evening.  What’s nice about these little treats is that you have a couple (or in my case way more than a couple) and you are not overly full but you feel like you had a real treat.

 

I was so impressed with all of the gluten-free offerings I wanted to be certain to take some samples with me to try out throughout the course of my visit.  I ended up with a slice of decadent chocolate cake topped with a caramel sauce, quite possibly the best carrot cake muffin I have ever had piled high with cream cheese icing, an apple spice muffin (fabulous), two huge chocolate brownies that were so moist they made me weep, a smorgasbord of cake balls, chocolate chip cookies, and a loaf of sandwich bread.  I also picked up some sugar-free shortbread cookies for my mother (who said they were they best she had come across).

What’s nice about the Sugar Shack is that you can pop-in, grab a coffee and sweet treat, sit down and enjoy it or take it with you.  The prices are the lowest I have come across for homemade gluten-free baked goods and you can mix and match until your heart’s content (just want one cupcake, not a problem, a slice of the cake, you got it).  Terri is just so nice you cannot help wanting to stay and chat.  She mentioned she is working on developing a way to provide mail order service for the cake balls in order to find a method that will protect them on their journey.  Be sure to check out there Web site and if you find yourself on or near Emerald Isle be sure to stop by and treat yourself.  Oh, and be sure to say “hello” to Terri for me.

The Swansboro Brew Shack Coffee and Desserts Shop is located at: 714-6 West Corbett Avenue, Swansboro, North Carolina 28584.  Phone: 910.325.7409

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